Mark survived Stage IV Rhabdomyosarcoma. Survivors guilt is overwhelming when facing everyday difficulties you can no longer manage.
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A few weeks ago, I decided to do several entries concerning the hardships of what someone dealing with permanent side effects of treatment faces in trying to support themselves and a family.
One of my most identifying characteristics is my sarcastic wit (I see that talent as a strength, but it depends on whom is on the other end). Sarcasm is something people vary concerning if they deem it a positive or negative characteristic. When conversation identifies an opportunity to express that part of my personality, it can help or hurt my efforts.
Lately, I've consistently come up against organizations, companies, and individuals who "pass the buck." Another variation of their indifference uses the terms "I understand; I would feel the same way if I were you, but there is NOTHING WE CAN DO." Such massive gutlessness makes me cringe and very confrontational.
Hmm. That entire phrase infuriates me. "Nothing we can do." Really? Nothing? You can't ask another company, organization, or individual what would be the best course of action? You can't share my information, purpose, story, and areas of expertise? Nothing?
Don't be one of the "nothing we can do" people. Regardless of your circumstance, there is always something you can do for someone in need. Cancer survivors all over the world are finding out post-treatment challenges are often ignored. The same doctors and organizations who asked for your trust in eliminating cancer, are the same ones who don't provide answers when side effects take away basic choices you need to provide for your family.
A few weeks ago, a social worker from a prestigious cancer hospital suggested one of the companies that find jobs for survivors. I sent a detailed email about my experience, concerns, and need for guidance. A few days later, a response came. I received glowing remarks for my credentials but was overqualified for their service. They did suggest perhaps they misunderstood and offered a phone consultation. Three unreturned emails since I still have yet to receive one.
I'm finding out the hard way working hard, being proactive, and harassing people you expected would keep their word, isn't the answer. What hurts me most is my personality is changing. The stress is killing me. I took a risk investing in myself, but the debt is now more than I receive.
Much like the strength exhibited to defeat cancer, you need the same perseverance in fighting life post-treatment.
I can always be reached by email (CKMagicSports@gmail or MEKelly@CKMagicSports.com). Please see the links below to follow me or contact me on social sites. I welcome (need) more followers and supporters. Please don't be shy about sharing your thoughts.
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